mama A 1-day-conference on biobank governance is held at University of Vienna’s political science department, organized by the interdisciplinary research platform “Life-Science-Governance” (LSG): “Biobank Governance in Comparative Perspective: Strategies – Ethics – Resistance”
This is from their announcement:
This interdisciplinary conference focuses on the governance of biobanks. Biobanks constitute a new challenge for governance, and can themselves be understood as new forms of governing bodies and populations. Biobanks are an important element in the new biopolitical order in which self-guidance through active citizens is as significant as state-led strategies of population politics, body monitoring, the rise of the new bio-economy, and the redefinition of citizenship. Biobanks, thus, cannot be disconnected from considerations of power, resistance, ethics, politics, and the reshaping of current practices in biomedical governance. The various presentations at the conference will address these topics based on empirical case studies. Our main objective will be to identify emerging patterns of biobank governance, and their implications for science, society, politics, and culture.
Programme:
09:00 – 09:20 Introduction
Herbert Gottweis (University of Vienna): Biobanks as a Challenge of Governance
09:20 – 10:30 Biobank Governance Compared: Translating Vision into Practice? Part 1
Gisli Pálsson (University of Iceland):
The Rise and Fall of a Biobank: The Case of Iceland.
Oonagh Corrigan (University of Plymouth):
UK Biobank: Governing Science and Society
Amy Fletcher (University of Canterbury):
Biobanks, Ownership and Regulation in the United States
10:30 – 10:50 Coffee Break
10:50 – 11:30 Biobank Governance Compared: Translating Vision into Practice? Part 2
Herbert Gottweis (University of Vienna)/Robert Triendl (Center of Life Science and Society, Tokyo): Making Biobanks Happen: Comparing Experiences from Estonia and Japan
Lars Ursin (University of Trondheim):
Governing Biobanks in Scandinavia: The Pursuit of the Autonomous Participant
11:45 – 12:30 Round-table: Biobank Governance: Learning from Experience
Richard Tutton (University of Nottingham)
Kurt Zatloukal (Medical University Graz)
Ingrid Schneider (University of Hamburg)
Beverley McNamara (University of Western Australia)
Michaela Mayrhofer (University of Vienna)
Mylène Deschênes (p3G Consortium, Montreal)
12:30 – 01:30 Lunch Break
01:30 – 03:30 Towards the Ethical Governance of Biobanks
Ruth Chadwick (Cardiff University):
Biobanks and Governance – can Ethics be harmonised?
Tsjalling Swierstra (University of Twente):
Biobanks: Some Republican Observations on the Communitarian Turn
Barbara Prainsack (University of Vienna):
Research Populations: Biobanks in Israel
Discussants: Gil Siegal (Law Faculty, Ono Academic College, Israel),
Catherine Waldby (University of New South Wales)
03:30 – 04:00 Coffee Break
04:00 – 06:00 Biobanks in Practice. Challenges Past and Ahead
Kurt Zatloukal (Medical University Graz):
Tissue banks in Personalized Medicine:
Experiences from the Genome Austria Tissue Bank (GATiB)
Mylène Deschênes (p3G Consortium, Montreal):
P3G (the Public Population Project in Genomics):
The Practice of Transnational Biobank Governance
Concluding Round Table
Alan Petersen (University of Plymouth)
Herbert Gottweis (University of Vienna)
Ruth Chadwick (Cardiff University)
Gisli Pálsson (University of Iceland)
